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Discussion Starter #1 (Edited)
I debated quite awhile about posting about this here on the forum, since I'm a fairly private person, but since this is a pretty big deal for me, I figured I needed as many positive thoughts as possible from as many people as possible!

A bit of history, in short: I've been living on 1 kidney since 1981. Was born with 4; had a series of operations as a baby. The last major kidney operation was in 1981 when I was left with one. It's been, as my mom put it, "pulling a yeoman's job" of supporting me for that long.

Well, a couple of months ago, my nephrologist suggested that I get a "pre-emptive" kidney transplant which means have a transplant done before it's necessary to go on dialysis. Since then, I've gone thru a battery of very preliminary tests and the results sent to Cleveland Clinic, my choice of places to do the transplant.

Next Monday, October 20th, I'm headed up there for the first time for the entire day, basically doing a meet-and-greet with a bunch of specialists, and have a couple of additional tests. Again, this is all very preliminary; the transplant is not even scheduled yet, nor am I yet on a transplant list.

Anyway, in short, I feel freaked out, scared, anxious, nervous about it all. A friend of mine will be coming with me next Monday (we'll be driving up from Columbus), but as of now it's not 100% certain she can come with me due to medical issues of her own. Either way, I have to be there at 6:30am. Means leaving my house at 4am, possibly picking her up where she lives in Delaware, OH, and driving the 2 hours to Cleveland.

Sooo, that's what's happening. Really needed to just get it all out there.

I guess one question I could ask is, does anyone here have any experience with Cleveland Clinic?

Thanks for reading and listening! :)
 

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Personally, no. But Cleveland Clinic, University of Pittsburgh and OSU are the premier transplant hospitals in the area. My father was at Pittsburgh, but that was back in the early 70's. Best of luck and prayers for you.
 

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Kye & Coops Mom
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Prayers are being sent. Surely it won't be as scary once you are there. Know your friends here are holding your hand and not letting go. Let us know.
 

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I debated quite awhile about posting about this here on the forum, since I'm a fairly private person, but since this is a pretty big deal for me, I figured I needed as many positive thoughts as possible from as many people as possible!

A bit of history, in short: I've been living on 1 kidney since 1981. Was born with 4; had a series of operations as a baby. The last major kidney operation was in 1981 when I was left with one. It's been, as my mom put it, "pulling a yeoman's job" of supporting me for that long.

Well, a couple of months ago, my nephrologist suggested that I get a "pre-emptive" kidney transplant which means have a transplant done before it's necessary to go on dialysis. Since then, I've gone thru a battery of very preliminary tests and the results sent to Cleveland Clinic, my choice of places to do the transplant.

Next Monday, October 20th, I'm headed up there for the first time for the entire day, basically doing a meet-and-greet with a bunch of specialists, and have a couple of additional tests. Again, this is all very preliminary; the transplant is not even scheduled yet, nor am I yet on a transplant list.

Anyway, in short, I feel freaked out, scared, anxious, nervous about it all. A friend of mine will be coming with me next Monday (we'll be driving up from Columbus), but as of now it's not 100% certain she can come with me due to medical issues of her own. Either way, I have to be there at 6:30am. Means leaving my house at 4am, possibly picking her up where she lives in Delaware, OH, and driving the 2 hours to Cleveland.

Sooo, that's what's happening. Really needed to just get it all out there.

I guess one question I could ask, is does anyone here have any experience with Cleveland Clinic?

Thanks for reading and listening! :)

Wendy, I cannot speak to the question of whether the Cleveland Clinic is best for you as I live in Virginia. I can however identify with your state of mind concerning all this. We all have dark times in our lives and we need to be able to reach out to God and to others during these times for support and companionship. I really hope that your friend will be able to go with you but know that regardless we always can find comfort in the Lord. We know from scripture that a sparrow, the lowliest of all birds, does not fall from the sky without our Lord taking notice. So we, who are so much more than many sparrows, capture His attention and concern. God is always there to offer us comfort in our time of need. We thank you so much for letting us know about your situation and I will pray that things go well for you during your tests and operation. :wavey:
 

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Discussion Starter #10
Thank you all soooo much for your support! I'm practically in tears now (good tears) just reading your loving and supportive posts. Thanks again!
 

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I don't have experience with the Cleveland Clinic, but a few years ago my mother aorta aneurysm so she needed very risky surgery. In my research, Cleveland Clinic kept coming up as being the best place to have this surgery. I was quite impressed with what I read from them.

I know of a couple people that have had a successful kidney transplants.

We will keep you in our prayers.
 

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Please know I'm thinking about you and sending positive thoughts and prayers your way.
 

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Good thoughts are being sent your way. Good luck on the 20th!:)
 

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Prayers are being sent. Surely it won't be as scary once you are there. Know your friends here are holding your hand and not letting go. Let us know.
Ditto what Deber said.

It's natural to be scared when we are facing a health issue. I spoke to a friend of mine who is a nurse on a dialysis unit and he said Cleveland is a very highly regarded clinic. Sounds like you are going to the best place and will have a good medical team on your side. Ask lots and lots of questions until your mind is at ease. The "unknown" is the scariest part.

Keeping you in my prayers.
 

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One of my classmates went to Cleveland Clinic for his year long internship to finish his vascular technology degree. Any one of us could have been sent their so I learned a bit about it. I do know that it has a great reputation as being one of the best hospitals in the US. It's also a very large hospital. I live in Oregon and did my internship at Oregon Health and Sciences University, but I remember at least one patient who flew all the way to Cleveland Clinic for his surgery because they had the top surgeon in the nation for his procedure. I also saw at least a dozen kidney transplant patients at OHSU and they all seemed to be doing well. It's a very interesting surgery and I think personally I'd choose a transplant over dialysis any day. Best of luck to you and I hope everything goes perfectly!
 

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Discussion Starter #18
Update:

Well, I went to Cleveland Clinic. Long drive, at least for me. 2 hours up and back. After going to 1/3 of the appts, I made the decision not to have the transplant done by them. This is due to having to have 2-3 appts POST-op per week for at least 3 months! There's just no way that I'd be able to drive that distance that often, nor could I impose on anyone to drive me.

So, decided to go to OSU Medical. This was originally suggested by my nephrologist. On 11/20 I'll be attending an initial education session. All in all, a better choice, at least logistically-speaking, since it's only a 15-20 min drive, easier to have friends drive me, and easier to get a cab if necessary.

So that's the update for now! Thanks for all your support! :wavey:
 

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I miss my Buddy
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Wish you all the best, it is not an easy decision to make.
 

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I'm just reading your thread. You are in my thoughts and prayers. Post here whenever you want or need to. We are all here for you. Xxoo
 
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