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Dog Lover
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Kai

Thanks so much for the update on Kai. So sorry to hear August was a terrible month.
Please keep us posed on him and you!!
 
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He is a beautiful boy. You would never know by looking at the picture that anyone was wrong with him.

Don't kick your self of missing or delaying some of his meds. I have to take a thyroid pill 30 minutes before taking, then about a dozen after breakfast, another 8 after supper and one at bedtime. I have been onmanyof these for 8 years now. YET sometimes I still get into watching a show after supper , or get a phone call after breakfast, etc and forget to take them. I also have to take a Victoza injection every night and I have even forgotten it a couple of times when I was super tired. It is so easy to get involved in something and forget. My husband is on meds 3 times a day and he sometimes misses.

We are new to seizures--our 12 1/2 year old golden girl. Terrifying. She had 3 in a year's time, the last two only 3 weeks apart. Both times she was sleeping when they came on. We don't know about the first but are pretty sure she was sleeping as she always layer by the front door door waiting for us to return from tore and that is where we found her just as it was ending.

When she had the last one 3 weeks ago today, my vet was at a seminar up in Boston and had a fill in vet (small town of 4000, but my vet is so well known, he has clients come all the way out from Corpus, 25 miles away and filled with vets) fill in for him and she put Sophie on Phenobarbital. But she couldn't handle it and I took her off after a week. We took Sophie in for follow up on Tuesday and my et said he would not have put her on Pheno yet. They also found she had a raging, raging kidney infection and very anemic. I understand that sometimes severe infections can cause seizures. We are hoping that is it. Also, her poop result came back no blood, so hopefully once her horrible kidney infection is cleared, that will take care of her anemia.

Hoping and praying for the best for your beautiful guy.
 
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Kai

Hope Kai is doing better!!
 

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Discussion Starter #164
Kai's review with the Specialist

Hi there, well we went. As I said I was quite apprehensive of what would be said after past experiences.
We were taken through to the exam room and a Final Year Veterinary student began to take Kai's recent history. As usual I took my seizure diary along, to confirm dates, type of seizure, recovery, meds. It can get a little daunting putting it all down and getting the details right, I must admit ! Then she examined and weighed him.

I then waited while she reported back to the Neurologist. Again left me a little stressed as we haven't always seen eye to eye - but my approach was to attempt to put my frustrations aside, and meet with fresh mind.
She asked how often and how long the seizures had been coming, all the usual questions about his intake, exercise, general demeanour.

I had ensured his bloods had been done the week before so she had up-to-date information of his therapeutic levels.

She said that although Kai is on 3 anti seizure meds, the Kbr was a very low dose, and wanted to increase this a little together with a 250mg/dose increase of his Keppra, the Pheno doses were to stay the same. She wasn't going to load him, so they would take a few weeks to take effect. She also gave him a quick exam, checking his neurological responses.

I again asked her about this nightly episodes (which I thought were partial or focal seizures) there is no real twitching or stiffening, but frantic demeanour. I showed her what bit of video I had managed to get, as they passed so quickly she couldn't get a great view. They last for under a minute and come on very suddenly always when resting or dozing. Just a frenzy of what looks like fear and disorientation, my poor lad. Then back to normal ??? She said they didn't sound like seizures of any type, but obviously something. She said without an EEG whilst they were happening, she was at a loss.

However despite what sounds negative, she said he looks and presents the best she's ever seen him !!!!! A picture of health. Though she still says they feel he has this underlying 'brain inflammation' despite his last CSF being normal. She said they will review more blood levels in 6 weeks, once the meds have had time to take effect. So no help really with the evening episodes, and to carry on as normal. One thing she did advise however, was to get him vaccinated. She said that the vaccination could result in a spike of seizures but that risk of outweighs the benefits and as he seems in such good overall health to give it a go. I must admit I'm scared of doing this, I wouldn't want him to end up with cluster seizures :crying:

Well for anyone who reads this I hope it gives you an insight into this terrible disease. I know in my heart I've done the right thing with Kai, his quality of life at the present time, far outweighs the disadvantages he has to suffer in the form of seizures

So that is where we are at present. Any comments are happily read and do give me support. Bye for now, will update when we know anything else. :smile2:
 

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Update

Hi there, well we went. As I said I was quite apprehensive of what would be said after past experiences.
We were taken through to the exam room and a Final Year Veterinary student began to take Kai's recent history. As usual I took my seizure diary along, to confirm dates, type of seizure, recovery, meds. It can get a little daunting putting it all down and getting the details right, I must admit ! Then she examined and weighed him.

I then waited while she reported back to the Neurologist. Again left me a little stressed as we haven't always seen eye to eye - but my approach was to attempt to put my frustrations aside, and meet with fresh mind.
She asked how often and how long the seizures had been coming, all the usual questions about his intake, exercise, general demeanour.

I had ensured his bloods had been done the week before so she had up-to-date information of his therapeutic levels.

She said that although Kai is on 3 anti seizure meds, the Kbr was a very low dose, and wanted to increase this a little together with a 250mg/dose increase of his Keppra, the Pheno doses were to stay the same. She wasn't going to load him, so they would take a few weeks to take effect. She also gave him a quick exam, checking his neurological responses.

I again asked her about this nightly episodes (which I thought were partial or focal seizures) there is no real twitching or stiffening, but frantic demeanour. I showed her what bit of video I had managed to get, as they passed so quickly she couldn't get a great view. They last for under a minute and come on very suddenly always when resting or dozing. Just a frenzy of what looks like fear and disorientation, my poor lad. Then back to normal ??? She said they didn't sound like seizures of any type, but obviously something. She said without an EEG whilst they were happening, she was at a loss.

However despite what sounds negative, she said he looks and presents the best she's ever seen him !!!!! A picture of health. Though she still says they feel he has this underlying 'brain inflammation' despite his last CSF being normal. She said they will review more blood levels in 6 weeks, once the meds have had time to take effect. So no help really with the evening episodes, and to carry on as normal. One thing she did advise however, was to get him vaccinated. She said that the vaccination could result in a spike of seizures but that risk of outweighs the benefits and as he seems in such good overall health to give it a go. I must admit I'm scared of doing this, I wouldn't want him to end up with cluster seizures :crying:

Well for anyone who reads this I hope it gives you an insight into this terrible disease. I know in my heart I've done the right thing with Kai, his quality of life at the present time, far outweighs the disadvantages he has to suffer in the form of seizures

So that is where we are at present. Any comments are happily read and do give me support. Bye for now, will update when we know anything else. :smile2:
Thanks so much for the update on Kai. I have no experience to share, but what the vet said sounds positive.
My prayers for you both continue.
 
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Leslie
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Hi Maggs. I'm glad to hear Kai is doing fairly well lately. I hope you have no more "Augusts" in the future! I have no advice about vaccinations. Helo is vaccinated and has no seizures due to them, thankfully, but other dogs do react. I would be scared about it if I were you, too! He is a beautiful dog. Thanks for posting pictures. I wish life with Kai could be easy and calm for you, especially after all you went through with your other 2 boys. That said, you are a wonderful mom to Kai and are doing the best for him. Good job!!!
 

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Hi Maggs,
Glad to hear that Kai is doing well at the moment, despite you having such a rough time with him a couple of months ago. He looks so happy in the photo of him and it sounds like you're doing everything you possibly can for him. He's such a beautiful boy and he's lucky to have such a great golden Mom. Sammy sends him a big hug! :)
 

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Kai

Hi!

Just checking in on you and Kai. My Hubby, Ken, and Tucker, Tonka and I just moved to TN.
I haven't been on much since our move, as we are still getting settled.
Wanted you to know that I'm thinking of you and Kai.
 
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I'm so sorry that you and Kai are on the seizure path. It is one of the hardest I can imagine, having been down it with two beloved seniors.

Though she still says they feel he has this underlying 'brain inflammation' despite his last CSF being normal.
I have not read all of your thread, so I may be restating something you already know. Please forgive me if that's the case. I would suggest checking a few things that are sometimes overlooked. The first is thyroid levels, since hypothyroidism is common in Goldens and can trigger seizures. The second is blood pressure, since elevated blood pressure can trigger bleeds in the brain, which in turn can cause seizures.

For brain inflammation, a low dose of prednisone can help. Some vets consider it a drug "of last resort," since dogs adapt to it and the dose has to go up, producing unwelcome side effects. However, it does reduce inflammation in the brain that can cause seizures.

Please don't hesitate to contact me if you have questions. I am not a vet, but I have way too much experience with seizures in dogs and I am happy to share what I have learned.
 

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Maggsd

Thinking of you and Kai. Hugs and Kisses to him!
 

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Kai

Wishing you and Kai a Happy New Year.
 

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Discussion Starter #172
Thank you goldens girl.
Thanks for your advice, but as you may suspect Kai has had every conceivable test and procedure carried out. He was given high doses of Prednisolone when he was in Intensive Care, along with some form of chemo drug which they thought might help. That was almost right at the beginning and of all the investigations, neither did for him and in fact he was discharged on these meds almost 18 months ago. They completely ruined him and the side effects were horrific. I took the decision to stop them a couple of months after starting, he had no quality of life.
It did take some time for him to regain his previous fitness and 'good looks', but eventually he got almost back to normal. The seizures have continued and despite him being on three different anti-seizure meds they remain uncontrolled, he takes phenobarbitone, bromide and levitiracetam, and just this last week have added in Gabapentin. He also has rectal Diazepam as when his seizures start usually every two weeks,he has cluster seizures.
The Gabapentin is on trial as it has proven to be a success at reducing the frequency of some dogs with 'refractory seizures' which is what they say he has.
Life has certainly been very difficult but we continue to enjoy his seizure free periods. They say he has survived longer than what they had expected, but exactly how long he has is anyone's guess.
Thank you for your concern it is greatly appreciated.
Best & kindest regards Maggsd
 

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Discussion Starter #173
Are u ready guys !!!!!!!!

I recently returned from a week's holiday with my sisters, brother-in-laws and canines, the first since adopting Kai 5 years ago!!!
We rented a beautiful home on the East Coast of the U.K. well known for its history, beaches and beautiful countryside.
At the time I realised that unfortunately it would be around the time of Kai's cluster seizure pattern ,but it was the only time we could all get together.
The weather was fantastic, remember people this is the North of UK, and we don't tend to get hot weather, but not this week, we had one of the hottest week's recorded !!!
The first couple of days we mainly chilled in the garden overlooking the bay, short evening walks, good food and company.
Kai revelled in the fact he had his best friend to hang around with, and a garden to run freely, and plenty of attention from the two-legged humans !!
However, as we were located right on the beach he couldn't understand why his friend could go freely through the gate onto the beach and he was on a lead :frown2:
I had been advised by his specialist that due to his Bromide medication he shouldn't ingest any sea water as it could disrupt the effect of the medication, nor should I change his food without knowing the sodium levels in that food.

WELL

Kai had gained quite a bit of weight which for him was very unusual, so a few weeks previously I had begun to change his diet, albeit gradually, so thought I'd done ok.
He was so eager to join his friend on what was a beautiful beach, I decided one afternoon, to let him have a run, and boy did he love it.
He had been having a few minor episodes as was his norm, but they did seem to be increasing in amount and that evening he was particularly bad. He didn't want to sleep upstairs, so left him to his comfy bed downstairs, but he didn't settle, continuing to have these complex partials. Neither of us got any sleep. The following morning I gave his meds at 6am as is the norm for us. My brother in law was also up and having a quiet time but he called me saying Kai was having another event, it was not a full on seizure but prolonged complex partial, which he wasn't coming out of. I gave him rectal diazepam as instructed but this method isn't great, as it is impossible to know if all the meds have been delivered and often some is always left in the vial !
He still wasn't coming out of it so I called the emergency local vets and luckily they were just around the corner. We had to carry him into the back of the car, he was going worse, not with it at all. Oh my word, what had I done.:crying::crying::crying: Throughout the past years he hadn't been like this !!!! The vet quickly examined him, his temp was up and he unconscious. He took short history, and gave him some IV Valium, followed by IV fluids and oxygen. He didn't want to move him, so my beautiful boy was being nursed in the back of the car. I don't know how long he remained like this but it seemed forever, a second vet, arrived and examined him, asking whether I'd considered euthanasia !!!!!!!!! WHAT !!!!! NO I replied. She went back to speak to Kai's specialist in Liverpool, but couldn't get through.
To my surprise Kai eventually began to come around, not fully, but lifted his head and tried to make an attempt to lift his body, which at this point he couldn't. His temp had normalised and the vet said he could be moved inside for observation. Luckily the rest of the group had been in touch and by the time we had got Kai inside my two sisters had arrived. (They had been unaware of all this as the rest of the house were still asleep when we left). Of course I stayed with Kai in the pen, (I had flashbacks to 'Fluke & Harry's hospitalisation and losing them, :crying::crying::crying:).
The family were great, taking it in turns to stay with us, what support.
I told the vets I'd just had a full panel of bloods done at my local vets, along with drug levels so They tried to get to speak to them. After another period Kai seemed to becoming more conscious and then attempted to get to his feet, I was so pleased.
He was still on IV fluids, but it was obvious he wanted to pee :smile2: luckily the pen was near the back exit and beyond this was a lovely garden, where he managed to have a wonder and a very long pee !!!!!! I was elated, I hadn't lost Kai :smile2:
The vet examined him again, and was obviously very surprised this boy had recovered. (I'm sure she thought he would not make it). She said to try him with a little food and water, which he took willingly. We then waited a little while longer and eventually she returned saying 'I was in trouble with his specialist' 'for going against their advice' I already knew I would be, but hadn't thought a short episode in the beach would have caused such terrible consequences.
I was instructed to increase two of his meds, and ensure no further beach escapades. We finally got to leave, Kai had rallied and I was so thankful.
The following couple of weeks have been quiet, no further seizures, but a sleepy, tired Kai. I expected this with his increase in meds, but I think once again they have began to plateau. It's almost two weeks, around his expected cluster seizure time, so will see how things unfold.

I'm so happy I got to bring him home, how long he has nobody knows, but will continue to give him the best quality of life I can. This episode really shocked me, even though I know he can go at any time with his seizures, it showed me I will never be prepared.
I'll try to upload some pics.
If you have taken the time to read this, I thank you, it's just my way of dealing with it all. I suppose it's MY THERAPY ! I think I should write a book about all my episodes with all my beautiful boys and girl. :smile2:
 

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Maggsd, I read every single post from you about Kai seizures. Your thread was the first one I found after my Gatsby at the age of 4 had his first seizure about a half year ago. Kai is beautiful and strong and I am very happy he recovered from the last episode so well, as I know waiting for them to regain consciousness seems like it is taking forever.
 

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Discussion Starter #178
Maggsd, I read every single post from you about Kai seizures. Your thread was the first one I found after my Gatsby at the age of 4 had his first seizure about a half year ago. Kai is beautiful and strong and I am very happy he recovered from the last episode so well, as I know waiting for them to regain consciousness seems like it is taking forever.
Thank you so much for your kind words.
 

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I'm sorry your dog has a seizure problem but I'm glad you let your dog run free on the beach. Even if the vet scolded you. That wonderful soul of your golden needs to be free,,,mind and body. Happy Kai recovered..


dlm ny country
 

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Kai

Thanks so much for posting about your wonderful vacation with Kai. I'm so glad he got to run on the beach.
So relieved to read he recovered. I know that whatever time you two have together will be VERY SPECIAL, as
you love one another. Kai has a great Mom, I don't know that I could be as strong!!!

I've also read every single post you've ever made written about Kai!
 
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