I am reaching out everywhere I can. I have recently joined but already see the love this forum has! I have a service dog for my 6yr old daughter who has epilepsy/dravet syndrome and glutaric aciduria type 2. Both deadly diseases. She turns 7 on Nov 21. I was recently told that due to her GA2 she has lost 7lbs in a month and as result her heart is working twice as hard as it should be. This past week she is doing nothing but laying around. You can see the wear on her face. She has dark circles under her eyes, she is so skinny you can see her diaphragm/ribs. I am starting to lose my daughter and I am at a loss. They have told me to get in contact with hospice and that's was like turning the knife I was already stabbed with. I refuse as a mother to her to start planning for her arrangements. I need all the prayers for I know God is in control and his will, will be done. I need peace as I give my faith to him and am leaning on him for strength and I need prayers for my princess as she is fighting so hard every day.


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I am so sorry. Sending tons of prayers and positive vibes for your sweet little daughter to fight hard.

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9 & half short years in my life but forever in my heart http://www.goldenretrieverforum.com/...-my-buddy.html
"He took my heart and ran with it, and I hope he's running still, fast and strong, a piece of my heart bound up with his forever" - Patricia McConnell

Charlie could watch birds for hours and I could watch Charlie for hours too http://www.goldenretrieverforum.com/...n-morning.html

I'm so sorry! I will be sending out emails to add your beautiful daughter to the prayer list. No need to know her name, God knows it ♥

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many peace and prayers to you and your girl.

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I am so sorry to read this news. You and your daughter are in my thoughts.

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Dave

Thoughts and prayers going out to you and your beautiful daughter. I cannot even begin to imagine what you're going through. {{Hugs}}

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A Golden at the end of the day, makes the stress go away!

Sending prayers and strength to you and your princess.

Sending you many prayers for your little girl.

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"But if you tame me, then we shall need each other. To me, you will be unique in all the world. To you, I shall be unique in all the world . . . But you must not forget it. You become responsible, forever, for what you have tamed." The Little Prince

I am so sorry you have to go through this. My thoughts and prayers are with your beautiful daughter. I do not know much about the diseases that you mention, but when you feel ready, please please call hospice, that can provide so much support and information. Hospice workers are amazing people and truly heaven sent.

Sending Prayers up for your daughter.

I am sorry you all have to go through this.