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Old 11-10-2012, 09:37 PM
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I am reaching out everywhere I can. I have recently joined but already see the love this forum has! I have a service dog for my 6yr old daughter who has epilepsy/dravet syndrome and glutaric aciduria type 2. Both deadly diseases. She turns 7 on Nov 21. I was recently told that due to her GA2 she has lost 7lbs in a month and as result her heart is working twice as hard as it should be. This past week she is doing nothing but laying around. You can see the wear on her face. She has dark circles under her eyes, she is so skinny you can see her diaphragm/ribs. I am starting to lose my daughter and I am at a loss. They have told me to get in contact with hospice and that's was like turning the knife I was already stabbed with. I refuse as a mother to her to start planning for her arrangements. I need all the prayers for I know God is in control and his will, will be done. I need peace as I give my faith to him and am leaning on him for strength and I need prayers for my princess as she is fighting so hard every day.Click image for larger version

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Old 11-10-2012, 09:43 PM
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I am so sorry. Sending tons of prayers and positive vibes for your sweet little daughter to fight hard.
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Old 11-10-2012, 09:46 PM
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I'm so sorry! I will be sending out emails to add your beautiful daughter to the prayer list. No need to know her name, God knows it ♥
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Old 11-10-2012, 09:47 PM
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many peace and prayers to you and your girl.
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Old 11-10-2012, 09:50 PM
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I am so sorry to read this news. You and your daughter are in my thoughts.
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Old 11-10-2012, 09:56 PM
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Thoughts and prayers going out to you and your beautiful daughter. I cannot even begin to imagine what you're going through. {{Hugs}}
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Old 11-10-2012, 10:15 PM
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Sending prayers and strength to you and your princess.
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Old 11-10-2012, 10:23 PM
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Sending you many prayers for your little girl.
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Old 11-10-2012, 10:39 PM
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I am so sorry you have to go through this. My thoughts and prayers are with your beautiful daughter. I do not know much about the diseases that you mention, but when you feel ready, please please call hospice, that can provide so much support and information. Hospice workers are amazing people and truly heaven sent.
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Old 11-10-2012, 10:41 PM
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Sending Prayers up for your daughter.

I am sorry you all have to go through this.
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