Hopefully with this new year, things will improve even more.

So sorry that you and your family have been through so much.

Hugs and prayers for Alyssa.

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Hi, Stephanie. Just checking in on you and your family. How is everyone doing?

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Kathleen, mom to one human, age 17, three canines, and a bunch of fish.

Stephanie: Praying for you and your family.

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[IMG]http://i265.photobucket.com/albums/ii215

Tonka & Tucker

SNOBEAR at the Bridge
Dec. 23, 1999-March 27, 2010


SMOOCH at the Bridge.
Feb. 14, 1999-Dec. 7, 2010

She is gaining weight which is great! Her tube came out Saturday so we had to go to the hospital so they could replace it. We are on feeding breaks from 8am-12pm and 4pm-7pm bc her liver levels were elevated. She is tolerating the breaks well. She is looking much better. We see her heart dr thurs and we have bloodwork to recheck her liver.


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So glad to hear that she's gaining weight. You sound upbeat--I hope you weathering all this fairly well. I also hope you have some back-up for caring for your kids so you can take care of yourself. Thinking about you and Alyssa every day.

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Kathleen, mom to one human, age 17, three canines, and a bunch of fish.

Great news, Steph You have a lot of people in your corner praying and sending super positive vibes.

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Steph: That is wonderful news-praying!

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[IMG]http://i265.photobucket.com/albums/ii215

Tonka & Tucker

SNOBEAR at the Bridge
Dec. 23, 1999-March 27, 2010


SMOOCH at the Bridge.
Feb. 14, 1999-Dec. 7, 2010

The dr adjusted her feedings again. She has been increased from 100ml a hr to 120ml a hour with feeds from 10am-12pm, 4pm-7pm and again from 10pm-8am. She has vomited a couple times w this adjustment and hasn't look good she complains her stomach hurts her. We go back to her dr next week to put a longer tube in as she needs it with the weight gain. I'm going to talk to him then. I hope it's nothing major but it just doesn't look like her body can metabolize that much food in that time frame. This is disappointing for us and we are trying to work up to her having bigger breaks so she can return to school. Keeps the prayers as we need them. I feel like for every step forward we make we get knocked back 10more. She is also having a bad upper respiratory infection and we are fighting to keep it from turning into pneumonia. I appreciate all the support we get from here and all the prayers! It truly means a lot!


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Thinking of your little fighter every day. {{hugs}} to you and family.

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Kathleen, mom to one human, age 17, three canines, and a bunch of fish.

Thanks for the update, Steph. No matter how bad it seems, it does seem as though she'd going better than before. We're all praying for you and Alysa.

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