oops, sorry. I'm very familiar with Lupus, too. They think that, in addition to the polymyositis I have Mixed Connective Tissue Disease, but it doesn't really matter what the "working diagnosis" is because, as you know, they treat them all the same.
I wander around from 10 mg to 80 mg of prednisone per day. Um yep, can sure relate to the weight gain issue, which doesn't help a muscle disease. But without the steroids, I can't walk. I do methotrexate every now and then, too, the injected form, which does help. But I won't do the other biologic agents, the risk of secondary cancers is just too high. At least for now I won't.
I seriously can't make it without the steroids. The muscle aches are too bad, and my joints swell to put pressure on the nerves in my hands and feet, which causes a whole new set of problems. It's why I had a walking "boot" for 12 weeks last winter.
Anyway, I sure hope you feel better quickly without the steroids. I can sure appreciate the hell you are living in right now.
While yes I can agree with your descriptin of autoimmune diseases, Ashley is the one with RA, I've got Lupus, yet another autoimmune disease . When it's good, it's REALLY good but when it's bad it's UBER bad.
I put my foot down and said no more steroids a few weeks ago, due to the weight gain I've experienced - I just need to figure out alternatives, and drop this weight!
But no steroids for a few weeks means right now I'm in my own little slice of hell. Thankfully Remy seems to know when it's bad and stays at my side.
I'll say it again, Barb please keep us apprised of your progress. I know for me it was extremely rewarding to train Remy. It sounds like you are already reaping those benefits with your Tito.
CH Rosewood Little Giant, VCD2 UDX VER RA MHU SH MXP MJP MFP T2BP TD DJ VCX WCX CCA CGC FFX-OG (born 3-10-2007), also UCH HR UH UUD NN UJJ URO1 UHIT a.k.a. "Tito" (the Tito Monster)
waiting at the bridge:
My first dog, and my most special girl
Gibson's Golden Girl, CD, CGC, TDI ( 3-20-1997 - 11-22-2013) a.k.a. "Tiny", "Queen B"
and my heart dog
Gibson's Golden Guy, CD, CGC, TDI ( 01-31-1998 - 01-02-2012) a.k.a. "Toby", "HRH"