Thank you everyone for checking in on us
I had some problems accessing the forum and then Hannah had a bit of a setback and I didn't want to log on.
She had her 3rd round of chemo last week - she's handled the previous rounds well with the exception of her slight nausea. To try to avoid the nausea this time, we came home with Ondansetron in addition to the Cernia. The new med worked fantastically on her nausea - it was like nothing had happened. However, she had a strange side effect that they had never heard of - - within an hour of taking the meds, her rectum would completely relax and unfortunately poop would fall out while she slept. She was completely unaware of it. Fortunately it was "normal" poop, so I secured her in one room and dealt with it while she was on the new meds. The doctors are also trying to decide how to address her ongoing UTI problems during chemo (due to her lowered immune system and the concern of causing a septic infection) - this is being complicated by another problem - her kidney function.
Her urine protein creatinine ratio has gone up for the second time in a row (currently at their highest levels). Previously the ratio has come down when infections were controlled (UTI, skin, etc), but they were never in the normal range. We're initially making small adjustments to her meds - one thing at a time to try to isolate any adverse reaction. The kidney problems had become out of sight - out of mind and came rushing back. This news combined with some other things brought on the "ugh" which took a while to get out of my head.
Fortunately, we had a few lazy days with Christmas Eve/Day - the weather was dreary, but thankfully not severe as was originally forecast. The best gift I could have asked for was right here - Hannah feels good and is enjoying life - - for that, I am so grateful.
She's scheduled for her fourth round of chemo in a few weeks at which time they'll repeat her ultrasound and x-rays and re-stage her. Thank you again.